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Monday, August 27, 2012

More testing

April 30, 2012: Delainey had her ultrasound on her kidneys today. Her kidneys are still enlarged and small cysts were seen. I'm waiting to hear from nephrology (kidney specialists) and the Genetisist (a specialist linking common abnormalities) like her single artery umbilical cord, cleft lip and pallet and kidneys. She met with cardioligy and had a cardiac echo done and they concluded that she has a small PDA (in utero patent ductus arterous - aorta tapers off and could easily gave blood clots ) and a small ASD (Atrial septum defect - small hole between the two upper chambers of her heart) Things just seem to keep getting scarier and scarier, I never would have imagined that THIS would be my experience with my first baby.
May 1st: We got some results from her kidney tests today and her creatine levels went down and her kidneys are doing better. I was so proud of her today, she drank 30cc's for me at one feeding and 20cc's at her second. That's a lot for her! Today her Gramma Agard came to visit her for 2.5 hours and Delainey loved that! We are getting the pastor to come lay hands on her tomorrow and pray over her kidneys.

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